Juvenile Idiopathic Arthritis (JIA) affects approximately 100 in every 100,000 children of which JIA accounts for 10 to 20 percent. In Europe and North America the incidence of disease is the same in both sexes, unlike the female predominance seen in other subtypes of JIA. JIA differs from the other types of JIA by having severe systemic symptoms such as a spiking fever, in addition to the arthritis. Despite conventional therapies, a significant number of children are often left with serious and life-long complications such as growth defects and osteoporosis.
Roche in partnership with Pedro Elizalde Hospital aims to provide a general understanding of how a child relates to JIA, and deliver useful tools to help improve their daily lives. Roche developed and published a guide to JIA, in conjunction with physicians from Pedro Elizalde Hospital. The first such guide to be published in Argentina, the material’s high visual and narrative impact helps to explain the illness and the quality of life of children suffering from it. The guide’s five easy-to-read chapters, and an appendix with games, provide ideas on how to explain the disease to a child and general information for parents, teachers and caregivers. As part of the guide’s launch, Roche invited patients and their families explore the guide while enjoying a unique experience that focused on the beauty of being a child and enjoying life.
During the launch day event, children with JIA and their parents and siblings found a perfect environment to meet and share experiences. More than 30 patients with their families (over 120 attendees) analyzed the guide and took home useful information.
|Location||Argentina, Latin America and Caribbean|