• Organization TypeImplementing NGO, Advocacy NGO
  • HeadquartersUnited Kingdom
  • Founded1990

Fragile X Society

The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. At that time there were no facilities to support and inform families about any aspect of Fragile X, and so the Society came into existence. The charity has now grown to consist of a team of dedicated employees and volunteers, supporting thousands of individuals and families.
See more

Company Offices

  • United Kingdom (headquarters)
  • Great Dunmow
  • Rood End House 6 Stortford Road Great Dunmow Essex CM6 1DA