The Sclerosis Society (Scleroseforeningen)
The Sclerosis Society is a comprehensive organization supported by around 55,000 members and contributors. We have been around since 1957.
The Sclerosis Society was founded on May 1, 1957, when the then chief medical officer Dr. Torben Fog gathered a few hundred people to meet at the Women's House in Copenhagen. Sclerosis was at that time an unknown disease for ordinary people and most practitioners. Although disseminated sclerosis, called the disease at that time, had been known and described since 1841, it was nevertheless unknown in the general population, and went by the name "the forgotten disease".
The reason for forming a sclerosis association was Chief Kay Hyllested's dissertation "Disseminated sclerosis in Denmark" from 1956, where he made the number of people with sclerosis in Denmark up to almost 3000 (2731) people. At the same time, the dissertation became the start of the Danish sclerosis register, which is unique today.
The threefold purpose - research, patient support and information - that the Sclerosis Society has today grew out of demands from the association's members.
Initially, the purpose of the association was primarily research, but when the society's revolt against the authorities in the 60s flooded Denmark, the members of the Sclerosis Association revolted against the "professorial violence" in the association. They demanded increased influence in 1968. The association changed and members' demands for democratization of the association were met.
The association was reorganized and democratized. The 15 county districts and about 40 clubs across the country emerged, and from the mid-60s until 1984, when the association set up a patient committee, a social consultancy scheme worked - albeit on a low flare. The Patient Committee decided to hire social workers across the country, and a few years later followed the hiring of psychologists. It became the beginning of the counseling the association today offers its members with sclerosis.
As the years went by and the riddle of the sclerosis did not come to an end, the association recognized that for a person with sclerosis, life in well-being despite the disease is just as important. Being able to get help with all the problems associated with having sclerosis, being able to live as close to normal life as possible and being able to get relevant and beneficial treatment is essential for people with sclerosis.See more